Tuesday, December 3, 2013

Life Lesson #1: Reach out and show love

Since Ellie's diagnosis, we have been overwhelmed by the love and support of many around us. Our family and friends have been amazing. We have also been so touched by many members of the FSMA (Families of Spinal Muscular Atrophy) community. Within a week of our news, we received the most beautiful care package for Ellie including a new wagon to ride in, toys, a sheepskin blanket, a beautiful quilt, a new bath sponge and much more. What a way to show love!



Brenda Hanson and MJ Queen-Purk of B4SMA- Blankets for Spinal Muscular Atrophy Kids, sent this beautiful, cozy blanket to Ellie.

Her angel arm, in the video above, helps her move and see toys like she was never able to before. Thank you, Jacey's Journey!

Many families that are and have experienced what we are going through have reached out to us. It has meant so much and helped make this path a little easier to follow. We will be forever grateful for so many loving, caring souls who have come into our lives and we will continue to pay it forward and spread love and awareness for all affected by SMA. You are all inspiring beyond measure!!!

Please help us spread the word! Tell someone you know about SMA and Ellie's story today!

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