Cold weather and colds

Today our beautiful girl touched snow for the first time. Who's idea was this? You guessed it, the biggest snow enthusiast I have ever met; her big brother! I am not sure she is so enthusiastic, but this is a must moment nonetheless.

Other news: We have our first cold since diagnosis. :-( Good news is, we have a bi pap machine to help Ellie breathe a little better. This is what it looks like:

Yes, you do see a smile under the mask.

We are patiently waiting for our daddy to return from an overnight business trip. Ellie can't wait for more hugs and cuddles from him.

Meanwhile, we are enjoying lots of snuggles and keeping our Bellsy warm and cozy inside today.We hope you're enjoying this snow day too!

Grandma Lizzy singing Christmas songs and cuddling.

If you enjoyed this post, remember to tell someone you know about Ellie's story and SMA today. Help us spread the word! And as always, thank you for your love, support and following our journey.